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Naanad started the topic Travel Items in the forum Useful Items You Use at Home

Items to use when traveling to make things easier.

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Naanad replied to the topic Home Items in the forum Useful Items You Use at Home

I was recommended to get a set of these for my mom who has the shaking hands side effect from time to time. Weighted Utensils

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Naanad wrote a new post, RCDOM now has Forums!

We now have forums up. You can find them here. Why did we put forums on our site you ask? Well, we went with this option after users pointed out”wall” posts to our Facebook were public and their family...

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Naanad posted a new activity comment

Well you’re definitely not alone In reply to - Naanad wrote a new post, Community Support Newsletter For those who have not heard, our great friend and huge supporter A.M. Styles a started a newsletter...

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Naanad wrote a new post, RSD Angel Express September Edition

As some know A. M. Styles, author of the RSD Fighters Creed, produces the RSD Angel Express quarterly and once again he has not failed to impress. For those who would like to see and or download the […]

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Naanad wrote a new post, A RSD Angel asks about the Freezes

QUESTION: Even though I am a flame of burning heat, I also experience extreme ice (freezes), coldness in my feet and ankles. The cold hurts so much that I heat up rice bags I’ve made to warm them up or...

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Naanad posted a new activity comment

I swear the freezes I get were far more horrific than the burns. That’s why even now in remission I sleep with a heated blanket on my bed. For fear of being cold like that again is a personal...

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Naanad posted a new activity comment

Do you use Epson salts? In reply to - Naanad wrote a new post, A RSD Angel asks about the Freezes QUESTION: Even though I am a flame of burning heat, I also experience extreme ice (freezes), coldness...

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Naanad posted a new activity comment

I know even at the hottest setting sometimes I can’t feel my legs, so I try to set it at medium too, extend the life of the blanket, while still getting warmth to encourage more blood flow. (I killed...

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Naanad wrote a new post, Local Manitoba Meet Up

As many know we have our chats online to help those in areas who do not have local groups but we gladly share the local support groups on our support page. One such group is asking us to “Share and...

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Naanad and Breanne are now friends

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Naanad and Gracie Bagosy Young are now friends

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Naanad posted an update: @brie Was the first to find the feature (@reese...

@brie Was the first to find the feature (@reese found it initially when I tried it out the first time I tried to launch it)! Tag you’re it @brie

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Naanad posted a new activity comment

So yeah, I’ve been busy working on the site. I haven’t forgotten about the translation of the video Gracie, just finishing up the forums “launch” of this portion of the site. Which well, is done now. I...

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Naanad and RCDOM are now friends

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Naanad and mmhoffner are now friends

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Naanad and Diane Granger are now friends

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Naanad and Rose are now friends

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Naanad and lori drummond are now friends

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Naanad and Gail Kilman are now friends

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Naanad wrote a new post, CRPS UK Conference

CRPS UK Conference CRPS UK is a patient led non-profit organization which is applying for registered charity status. As part of our aim to support people with CRPS we are hosting our 3rd conference on...

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Naanad wrote a new post, Ask an Angel: School Age CRPS & Education

My child has had CRPS for a few  years now! It’s in the foot, ankle, and hand but really bad with pain in their ear( permanent headaches, nausea, vomiting, dizziness, and fainting)! They’ve started...

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Naanad and Hilary M are now friends

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Naanad and memaw2four are now friends

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Naanad and Reese are now friends

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Naanad and JennJ are now friends

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Naanad and OneBrokenToy are now friends

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Naanad posted a new activity comment

I think this color coding for the teachers is a great idea. As long as your child communicates before she is bad, it might help the teachers understand she’s not doing it at the first point but rather...

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Naanad posted a new activity comment

Elizabeth, is qi gong a meditation technique or stretching or something else? In reply to - Naanad wrote a new post, Ask an Angel: School Age CRPS & Education My child has had CRPS for a few  years...

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Naanad posted a new activity comment

Kaitlyn, do you think there might be something that should be discussed to help them understand better? Do you think the symptoms or some sort of way to communicate that you think would help her...

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Naanad replied to the topic Quell Relief in the forum Treatments

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Naanad and Kimberly Franchetto are now friends

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Naanad posted a new activity comment

It’s never easy at first with this. But as a daughter of someone 15 years in, a 10 year (7-8 symptomatic) veteran in remission for the second time, I can promise I’ve seen it. There is life after...

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Naanad wrote a new post, Update your bookmark

UPDATE NOTICE: As some may have already noticed, we have had an update to the site to make it easier to type, RCDOM.org. But some sites and links are still pointing to our old domain address. I’ll...

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Naanad wrote a new post, Life after Diagnosis: Evan Karp & The Snuggle Buddies

Life after the diagnosis can be hard. Many spend years fighting only to one day come face to face with the likelihood of progression and depression as their old life becomes a distant option.  Well we...

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Naanad posted a new activity comment

I’ve forwarded your information on. Unfortunately our newsletter is in digital form only, but the positive side to this is you can zoom in and read easier than on a printed form. In reply to - Naanad...

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Naanad and are now friends

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Naanad posted a new activity comment

The findings of the study would surely suggest there’s some correlation. That may not be the cause & that may not be the source of our cure, but ultimately it’s a good start. In reply to - RCDOM...

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Naanad joined the group Family/Friend/Caregivers

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Naanad and D'Ann Jacobs are now friends

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Naanad and Keith Addison are now friends

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Naanad wrote a new post, Today is the last day!

Our original link http://www.rsdcrpsdoesntownme.com will no longer work. Please update your bookmarks to http://www.rcdom.org

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Naanad and Jamie Pearson are now friends

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Naanad posted a new activity comment

I don’t know if Gracie will see this but thIs is the currently reported groups we have listed. http://www.rcdom.org/support/#north-america-florida In reply to - RCDOM wrote a new post, Gracie Gean’s...

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Naanad posted an update: Have an amazing next couple weeks and travel safe.

Have an amazing next couple weeks and travel safe.

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Naanad and Lyn Lewis are now friends

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Naanad replied to the topic Travel Items in the forum Useful Items You Use

I was given Heat Holders for Christmas. I think these are great for in the home and especially out of the home when it’s cold.

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Naanad posted a new activity comment

That’s definitely what my experience was with my car accident. We started at 80k. Ended at 30k, which 1/3 went to the lawyer, 1/3 went to my past due medical bills, and 1/3 went to me to cover my past...

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Naanad wrote a new post, Pain Community Stuck In Another War

It’s recently come to light that pain patients aren’t just fighting a war against the US administration for our medicine, but now  Facebook Pain Groups are being targeted by Hackers. So we’re taking a...

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Naanad posted a new activity comment

Yeah, sadly I think you’re in the majority here. But I’ll be honest I went the other way. I don’t care if they don’t want to know. I think of it like diabetes. I have this, if you want to know more,...

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