Naanad started the topic Travel Items in the forum Useful Items You Use at Home
Items to use when traveling to make things easier.
View ArticleNaanad replied to the topic Home Items in the forum Useful Items You Use at Home
I was recommended to get a set of these for my mom who has the shaking hands side effect from time to time. Weighted Utensils
View ArticleNaanad wrote a new post, RCDOM now has Forums!
We now have forums up. You can find them here. Why did we put forums on our site you ask? Well, we went with this option after users pointed out”wall” posts to our Facebook were public and their family...
View ArticleNaanad posted a new activity comment
Well you’re definitely not alone In reply to - Naanad wrote a new post, Community Support Newsletter For those who have not heard, our great friend and huge supporter A.M. Styles a started a newsletter...
View ArticleNaanad wrote a new post, RSD Angel Express September Edition
As some know A. M. Styles, author of the RSD Fighters Creed, produces the RSD Angel Express quarterly and once again he has not failed to impress. For those who would like to see and or download the […]
View ArticleNaanad wrote a new post, A RSD Angel asks about the Freezes
QUESTION: Even though I am a flame of burning heat, I also experience extreme ice (freezes), coldness in my feet and ankles. The cold hurts so much that I heat up rice bags I’ve made to warm them up or...
View ArticleNaanad posted a new activity comment
I swear the freezes I get were far more horrific than the burns. That’s why even now in remission I sleep with a heated blanket on my bed. For fear of being cold like that again is a personal...
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Do you use Epson salts? In reply to - Naanad wrote a new post, A RSD Angel asks about the Freezes QUESTION: Even though I am a flame of burning heat, I also experience extreme ice (freezes), coldness...
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I know even at the hottest setting sometimes I can’t feel my legs, so I try to set it at medium too, extend the life of the blanket, while still getting warmth to encourage more blood flow. (I killed...
View ArticleNaanad wrote a new post, Local Manitoba Meet Up
As many know we have our chats online to help those in areas who do not have local groups but we gladly share the local support groups on our support page. One such group is asking us to “Share and...
View ArticleNaanad posted an update: @brie Was the first to find the feature (@reese...
@brie Was the first to find the feature (@reese found it initially when I tried it out the first time I tried to launch it)! Tag you’re it @brie
View ArticleNaanad posted a new activity comment
So yeah, I’ve been busy working on the site. I haven’t forgotten about the translation of the video Gracie, just finishing up the forums “launch” of this portion of the site. Which well, is done now. I...
View ArticleNaanad wrote a new post, CRPS UK Conference
CRPS UK Conference CRPS UK is a patient led non-profit organization which is applying for registered charity status. As part of our aim to support people with CRPS we are hosting our 3rd conference on...
View ArticleNaanad wrote a new post, Ask an Angel: School Age CRPS & Education
My child has had CRPS for a few years now! It’s in the foot, ankle, and hand but really bad with pain in their ear( permanent headaches, nausea, vomiting, dizziness, and fainting)! They’ve started...
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I think this color coding for the teachers is a great idea. As long as your child communicates before she is bad, it might help the teachers understand she’s not doing it at the first point but rather...
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Elizabeth, is qi gong a meditation technique or stretching or something else? In reply to - Naanad wrote a new post, Ask an Angel: School Age CRPS & Education My child has had CRPS for a few years...
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Kaitlyn, do you think there might be something that should be discussed to help them understand better? Do you think the symptoms or some sort of way to communicate that you think would help her...
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It’s never easy at first with this. But as a daughter of someone 15 years in, a 10 year (7-8 symptomatic) veteran in remission for the second time, I can promise I’ve seen it. There is life after...
View ArticleNaanad wrote a new post, Update your bookmark
UPDATE NOTICE: As some may have already noticed, we have had an update to the site to make it easier to type, RCDOM.org. But some sites and links are still pointing to our old domain address. I’ll...
View ArticleNaanad wrote a new post, Life after Diagnosis: Evan Karp & The Snuggle Buddies
Life after the diagnosis can be hard. Many spend years fighting only to one day come face to face with the likelihood of progression and depression as their old life becomes a distant option. Well we...
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I’ve forwarded your information on. Unfortunately our newsletter is in digital form only, but the positive side to this is you can zoom in and read easier than on a printed form. In reply to - Naanad...
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The findings of the study would surely suggest there’s some correlation. That may not be the cause & that may not be the source of our cure, but ultimately it’s a good start. In reply to - RCDOM...
View ArticleNaanad wrote a new post, Today is the last day!
Our original link http://www.rsdcrpsdoesntownme.com will no longer work. Please update your bookmarks to http://www.rcdom.org
View ArticleNaanad posted a new activity comment
I don’t know if Gracie will see this but thIs is the currently reported groups we have listed. http://www.rcdom.org/support/#north-america-florida In reply to - RCDOM wrote a new post, Gracie Gean’s...
View ArticleNaanad posted an update: Have an amazing next couple weeks and travel safe.
Have an amazing next couple weeks and travel safe.
View ArticleNaanad replied to the topic Travel Items in the forum Useful Items You Use
I was given Heat Holders for Christmas. I think these are great for in the home and especially out of the home when it’s cold.
View ArticleNaanad posted a new activity comment
That’s definitely what my experience was with my car accident. We started at 80k. Ended at 30k, which 1/3 went to the lawyer, 1/3 went to my past due medical bills, and 1/3 went to me to cover my past...
View ArticleNaanad wrote a new post, Pain Community Stuck In Another War
It’s recently come to light that pain patients aren’t just fighting a war against the US administration for our medicine, but now Facebook Pain Groups are being targeted by Hackers. So we’re taking a...
View ArticleNaanad posted a new activity comment
Yeah, sadly I think you’re in the majority here. But I’ll be honest I went the other way. I don’t care if they don’t want to know. I think of it like diabetes. I have this, if you want to know more,...
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